Nondiscrimination Policy and Privacy Protection in Case of Genetic Passport for Soldiers

Authors

  • Gulshat Raissova PhD Student, KAZGUU University Law School, Kazakhstan
  • Dana Mukhamejanova PhD Student, KAZGUU University Law School, Kazakhstan.

DOI:

https://doi.org/10.48165/sajssh.2021.2309

Keywords:

Genetic discrimination, genetic passport, human rights, privacy, data protection

Abstract

It is difficult now to imagine the field of life, where genetic technologies have not been used. In Russia, there are already genetic passports of athletes, which made it possible to identify so-called "sports genes" that can predict individuals' inclination to a particular sport. In the United States of America, the Department of Defense (DOD) collects and uses the genetic information of all U.S. service members, including active duty and reserve military personnel. This article aims to explore the connection between genetic discrimination and protection of privacy. Whether the accessibility of such genetic data at the disposal of third parties will not lead to violations of their privacy that could further result in genetic discrimination? Basic human rights instruments in domestic and international law that regulates the right to non-discrimination and right to privacy will be reviewed beneath.  

References

th edition of Health of the Force released by Army Public Health Center. (2020). DVIDS. https://www.dvidshub.net/news/370336/5th-edition-health-force-released-army-public-health-center

Alvarez-Cubero, M., Saiz, M., Martinez-Gonzalez, L., Alvarez, J., Eisenberg, A., Budowle, B., & Lorente, J. (2012). Genetic Identification of Missing Persons: DNA Analysis of Human Remains and Compromised Samples. Pathobiology, 79(5), 228–238. https://doi.org/10.1159/000334982

Baruch, S., & Hudson, K. (2008a). Civilian and Military Genetics: Nondiscrimination Policy in a Post-GINA World. The American Journal of Human Genetics, 83(4), 435–444. https://doi.org/10.1016/j.ajhg.2008.09.003

Baruch, S., & Hudson, K. (2008b). Civilian and Military Genetics: Nondiscrimination Policy in a Post-GINA World. The American Journal of Human Genetics, 83(4), 435–444. https://doi.org/10.1016/j.ajhg.2008.09.003

Brannon, R. B., Morlang, W. M., & Smith, B. C. (2003). The Gander Disaster: Dental Identification in a Military Tragedy. Journal of Forensic Sciences, 48(6), 2003094. https://doi.org/10.1520/jfs2003094

China has treated 86 people with CRISPR genome editing - BioNews. (2020). China Has Treated 86 People with CRISPR Genome Editing - BioNews. https://www.bionews.org.uk/page_96339

Clayton, E. W., Evans, B. J., Hazel, J. W., & Rothstein, M. A. (2019). The law of genetic privacy: applications, implications, and limitations. Journal of Law and the Biosciences, 6(1), 1–36. https://doi.org/10.1093/jlb/lsz007

Council of Europe. (2005). Additional Protocol to the Convention on Human Rights and Biomedicine, concerning Biomedical Research. Jahrbuch Für Wissenschaft Und Ethik, 10(1). https://doi.org/10.1515/9783110182521.391

De Castro, M., Biesecker, L. G., Turner, C., Brenner, R., Witkop, C., Mehlman, M., Bradburne, C., & Green, R. C. (2016a). Genomic medicine in the military. Npj Genomic Medicine, 1(1). https://doi.org/10.1038/npjgenmed.2015.8

De Castro, M., Biesecker, L. G., Turner, C., Brenner, R., Witkop, C., Mehlman, M., Bradburne, C., & Green, R. C. (2016b). Genomic medicine in the military. Npj Genomic Medicine, 1(1). https://doi.org/10.1038/npjgenmed.2015.8

de Paor, A. (2014). Regulating Genetic Information—Exploring the Options in Legal Theory. European Journal of Health Law, 21(5), 425–453. https://doi.org/10.1163/15718093-12341335

Doffman, Z. (2019, June 10). Russia Will Genetically Test Soldiers To Identify The Best Fighters And Thinkers. Forbes. https://www.forbes.com/sites/zakdoffman/2019/06/08/russias-new-genetic-military-passports-will-sort-the-fighters-from-the-thinkers/

E. (2020). HUDOC - European Court of Human Rights. CASE OF S. AND MARPER v. THE UNITED KINGDOM ECHR. https://hudoc.echr.coe.int/eng?i=001-90051

Federal Law of 27 July 2006 N 152-FZ ON PERSONAL DATA. (2020). Federal Law of 27 July 2006 N 152-FZ ON Personal Data. https://pd.rkn.gov.ru/authority/p146/p164/

Geller, L. N., Alper, J. S., Billings, P. R., Barash, C. I., Beckwith, J., & Natowicz, M. R. (1996). Individual, family, and societal dimensions of genetic discrimination: A case study analysis. Science and Engineering Ethics, 2(1), 71–88. https://doi.org/10.1007/bf02639319

Green, R. C., Lautenbach, D., & McGuire, A. L. (2015). GINA, Genetic Discrimination, and Genomic Medicine. New England Journal of Medicine, 372(5), 397–399. https://doi.org/10.1056/nejmp1404776

Kaplan, K. (2019, March 2). U.S. military practices genetic discrimination in denying benefits. Los Angeles Times. https://www.latimes.com/archives/la-xpm-2007-aug-18-sci-genes18-story.html

Motoc, I. V. (2009, September 19). The International Law of Genetic Discrimination: The Power of ‘Never Again’. MOTOC, Iulia Voina. “The International Law of Genetic Discrimination: The Power of ‘Never Again.’” https://cadmus.eui.eu//handle/1814/12586

Murphy, H., & Zaveri, M. (2019, December 25). Pentagon Warns Military Personnel Against At-Home DNA Tests. The New York Times. https://www.nytimes.com/2019/12/24/us/military-dna-tests.html

Otlowski, M., Taylor, S., & Bombard, Y. (2012). Genetic Discrimination: International Perspectives. Annual Review of Genomics and Human Genetics, 13(1), 433–454. https://doi.org/10.1146/annurev-genom-090711-163800

Peterson, M. R. (1996). The Armed Forces Institute of Pathology: an underutilized repository of case material. American Journal of Public Health, 86(4), 592. https://doi.org/10.2105/ajph.86.4.592

Reddy, A. (2008). The Eugenic Origins of IQ Testing: Implications for Post-Atkins Litigation. Via Sapientiae. https://via.library.depaul.edu/law-review/vol57/iss3/5/

Scoville, S. L., Gardner, J. W., & Potter, R. N. (2004). Traumatic deaths during U.S. Armed Forces basic training, 1977–2001. American Journal of Preventive Medicine, 26(3), 194–204. https://doi.org/10.1016/j.amepre.2003.11.001

The Moscow Times. (2021, May 16). Russia Is a ‘Distinct Civilization,’ Putin Says. https://www.themoscowtimes.com/2020/05/18/russia-is-a-distinct-civilization-putin-says-a70295

Газета, Р. (2008, December 9). Федеральный закон от 3 декабря 2008 г. N 242-ФЗ ‘О государственной геномной регистрации в Российской Федерации’. Российская газета. https://rg.ru/2008/12/09/genom-registracia-dok.html

Downloads

Published

2021-06-03

How to Cite

Raissova, G., & Mukhamejanova, D. (2021). Nondiscrimination Policy and Privacy Protection in Case of Genetic Passport for Soldiers. South Asian Journal of Social Sciences and Humanities, 2(3), 140–150. https://doi.org/10.48165/sajssh.2021.2309